By now, we’re all aware of the competitive value of our data. You swim in a sea of it; you collect a mountain of it, with volume, variety, and velocity. What are your responsibilities with respect to this data? Why should anyone trust you with it? How can you share it and still meet your governance mandates? If you are pursuing a big data strategy, you need a framework for privacy, security, data sharing, and governance that people are willing to trust. Informed by the 7 Foundational Principles of Privacy by Design, PHEMI has implemented this framework as Zero Trust Data, a new approach to privacy, data sharing, and governance.
PHEMI’s Zero Trust Data framework involves several key innovations:
In PHEMI’s Zero Trust Data strategy, users are decoupled from data. Decoupling data description from user description allows data to remain stable—data should never change—while personnel, roles, departments, authorizations, and even organizations can freely change without disrupting the implementation. Extensible metadata future-proofs the implementation. This makes change, even pervasive and frequent change, much easier to manage.
The foundation for eHealth Initiative (eHi) recently conducted a series of interviews with executives at leading genomics and precision medicine organizations across the United States – including Johns Hopkins Hospital, Mayo Clinic, Vanderbilt University Medical Center, CancerLinq/American Society of Clinical Oncology – to provide insight on how clinical and genetic data is being used and managed.View all White Papers