Privacy by Design (PbD) is the international framework dedicated to protecting privacy by embedding it into the design of technologies and business practices. PHEMI has taken into account the 7 Foundational PbD principles throughout its entire system design, and the result is PHEMI’s unique Zero Trust Data framework.
The 7 Foundational Principles of Privacy by Design are as follows:
Organizations must not wait to address risks after they materialize. They must prevent them from occurring by tightly defining how data is stored and who is allowed to access it.
Any data stored should be automatically protected in any business system or practice. No action should be required to “turn on” privacy.
No data should be stored—much less accessed—without clear privacy and governance parameters associated with it.
Privacy should extend from prior to the first element being collected through the entire lifecycle of the data involved.
The system should be able to retain full functionality, even with privacy protection. There should be no trade-offs between privacy and security, or security and usability.
Users and providers of data, as well as independent parties, should be able to verify that privacy mechanisms are operating as expected.
Data systems must keep the interests of the individual foremost through mechanisms like strong privacy defaults, appropriate notice, and usability.
The foundation for eHealth Initiative (eHi) recently conducted a series of interviews with executives at leading genomics and precision medicine organizations across the United States – including Johns Hopkins Hospital, Mayo Clinic, Vanderbilt University Medical Center, CancerLinq/American Society of Clinical Oncology – to provide insight on how clinical and genetic data is being used and managed.View all White Papers